NHS healthcare · Dementia diagnosis · Measurement

The 66% Target: What the Dementia Diagnosis Data Actually Shows

England’s estimated diagnosis rate fell sharply after March 2020 and then partly recovered. The useful question is what changed in the pathway—not just whether a target was met.

By Syd Stewart · England · March observations, 2017–2026 · Latest annual point: March 2026

The short answer

The linked CSV records 66.3% in March 2026 (95% confidence interval 59.7–71.8), up from 65.6% in March 2025 and the highest annual figure since 2020. It sits just below the 66.7% ambition. NHS England reported in October 2026 that the two-thirds target had been met on its monthly series; the two series should not be spliced. A diagnosis-rate target measures recorded coverage, not the quality of diagnosis, support or patient outcomes.

What the rate measures

The estimated dementia diagnosis rate (EDDR) compares recorded diagnoses among people aged 65 and over with the estimated number living with dementia. The denominator is modelled, not a count of everyone who actually has dementia.

Changes in recording, the registered population and prevalence assumptions can affect the result alongside changes in diagnostic activity. The rate is useful, but it cannot tell us by itself how long people wait, whether diagnoses are accurate or what support follows.

This example uses ten annual March observations, 2017–2026, from the downloadable CSV: the nine values carried over from the original article, attributed to OHID Fingertips, and the March 2026 value added from the Fingertips dementia profile. It is not the full monthly NHS series. Earlier historical claims and later monthly results should not be read into these ten points.

A sharp fall, followed by partial recovery

The CSV’s highest rate is 68.7% in 2019. It records 67.4% in March 2020 and 61.6% in March 2021—a fall of 5.8 percentage points. The rate then rises in each annual observation to 66.3% in March 2026.

The timing is consistent with pandemic disruption, but the series alone cannot separate changes in access, referrals, assessment capacity, recording or the denominator. Nor can it attribute the earlier higher rates to a particular policy or incentive.

Existing X-mR chart of nine England March diagnosis rates, showing a fall in 2021 and subsequent partial recovery.
Existing X-mR output. Produced from the nine observations to March 2025 and retained unchanged, so the March 2026 point is not in this chart. All individual values lie inside the displayed limits. The 2020–2021 moving range exceeds its displayed upper limit. With only nine observations, these retrospective limits are provisional, not proof of a stable process or a clinical explanation. Open full size ↗
See the ten source-CSV values
March observationEstimated diagnosis rate
201767.9%
201867.5%
201968.7%
202067.4%
202161.6%
202262.0%
202363.0%
202464.8%
202565.6%
202666.3%

The source CSV also contains confidence bounds for the estimated rates. Those are not the X-mR process limits shown above.

What the CUSUM does—and does not—establish

Existing Bootstrap CUSUM output with nine annual observations and one fitted stage.
Existing Bootstrap CUSUM output. The displayed run reports one fitted stage at the 99.7% setting, with 1,000 loops and Turn Length 5. Open full size ↗

One fitted stage means this run did not identify a boundary under its settings. It does not prove there was no important change, that the system is returning to normal, or that detection is impossible at every other setting. The nine annual observations in this run provide limited information.

The green line accumulates deviations from the whole-series mean; its return towards zero is a mathematical consequence of centring, not evidence of recovery. A confidence setting is not the probability that a policy worked. Neither chart identifies a cause.

For local improvement, use a consistent, more frequent series where available, check definitions and dependence between observations, and record pathway changes alongside results.

Investigate the pathway, then test the change

Memory-clinic capacity, referral quality, workforce availability and access to assessment are plausible places to investigate. This national rate does not establish which is the binding constraint in a particular service. Talk to patients, carers and staff, and follow the work before choosing a solution.

State what the intervention should change, why and over what timescale. Monitor the intended benefit and possible harm. Do not extrapolate a date for reaching the national target from this short recovery segment.

How to take this further

For the complete framework, read Why Improvement Programmes Fail.

Sources, downloads and corrections

Correction: the earlier narrative and table disagreed with the linked CSV. This version uses its values, including 68.7% in 2019, 61.6% in 2021 and 64.8% in 2024; the March 2020–2021 fall is 5.8 percentage points. Existing chart images are retained unchanged and were produced from the nine observations to March 2025. Their displayed mean is 65.39%, individual-value limits are 61.17–69.61%, and moving-range upper limit is 5.19 points. The mean of the ten observations including March 2026 is 65.48%. These are software output, not rate-estimate confidence bounds.

Scope: the nine earlier CSV values are unchanged; only March 2026 has been added, from the Fingertips dementia profile. The original article notes a prevalence-method change around 2017/18, so earlier series should not be spliced in without checking comparability. Unsupported causal claims, recovery forecasts and the speculative causal-loop diagram have been removed. The 66.3% figure is the latest annual March observation in this series; the monthly NHS England release may differ and is not reproduced here. No claim is made here about treatment eligibility.